Welcome to Linda's Page
I need your help! Will you join Jimmy on the carousel? I invite you to make a gift. I invite you to join my team.
I've taken on the challenge to raise money for PVNH Support & Awareness. This international non-profit organization was created by Yolaine Dupont in memory of her daughter Ella. It is an indispensable group for those of us who have family members who have this rare disease, or who live with it themselves. My son Jimmy is living with a form of PVNH. When we first found out what was causing Jimmy's symtoms we had to sort through a lot of old, outdated information. It was finding Yolaine that helped me understand the nuances of PVNH and other neuronal heterotopia disorders. Joining the community Yolaine organized has provided tremendous support and knowledge. One of the biggest challenges is research. With your support together we can reach my team's goal and help a lot of kids like Jimmy who need our support.
I need your help fulfilling our Possible Dream.
What's our Possible Dream? To raise $50,000 to host the 4th international PVNH conference AND grant research funds to PVNH experts for much needed PVNH research! My personal goal is $7,500.
Will you help me make this happen? Let's break the ceiling and touch the clouds together to make a positive difference in the lives of PVNH affected children and families.
Thank you for helping Jimmy and all the other children affected by PVNH.
Festival of Children Foundation is the fiscal sponsor of this event.
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