Welcome to My Personal Page
I need your help! Will you join Elise on the carousel? I invite you to make a gift. I invite you to join my team to raise money for PVNH Support and Awareness. This international non-profit organization was created by Yolaine Dupont in memory of her daughter Ella. It is a group for those of us who have family members who have this rare disease, or who live with it themselves. Our daughter Elise, has a diagnosis of Subcortical Band Heterotopia, she is part of the PVNH family. Yolaine helped me make connections with others SBH families and experts, and I also learned more about families affected with PVNH.
Yolaine organized and provided us ressources and support. One of the biggest challenges is research. With your support together we can reach my team's goal and help a lot of kids like Elise who needs our support.
I need your help fulfilling our Possible Dream.
What's our Possible Dream? To raise $50,000 to host the 4th international PVNH conference AND grant research funds to PVNH experts for much needed PVNH research!
Thank you for helping Elise and all the other children affected by PVNH.