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I need your help!
Taylor is actually affected by a rare genetic disorder. Luckily, our experiences have made her stronger and we have been able to over come them. Taylor was diagnosed at 9 months with a X-linked Periventricular Heterotopia. She had low muscle tone and her pediatrician referred her to a neurologist. Needless to say the first neurologist we saw did not know about her disease and thought she may have a brain tumor. Luckily, we saw a very knowledgeable neurologist at Texas Children's Hospital and he was able to easily diagnose her heterotopias. After that we were referred to all the right doctors and have been so blessed with her medical team. Currently, she is a normally functioning 11 year old and we have hit a few bumps in the road but deal with them as they come. I ask for your donations and support because her disease is so rare and so many people are affected dramatically by this disorder. There is no cure but we do manage her symptoms as they arise.
I've taken on the challenge to raise much needed funds for my favorite charity to fulfill their Possible Dream. With your support, together we can reach my team's goal and help a lot of kids who need our support.
Your gift will make a positive difference in the lives of children and families!
P.S. Please consider joining our team, too, and help us power up our fundraising efforts.
Festival of Children Foundation is the fiscal sponsor of this event.