How can our Duct Tape help ALD?
Dear Duct Tape,
Many of you have asked how you can help. Here's a start!
ALD was been added to the Recommended Uniform Screening Panel in February 2016, but at this time only five states are actively testing for the disease (New York, Connecticut, California, Pennsylvania and Minnesota). ALD Connect is helping to raise awareness for our disease and the importance of Newborn Screening to identify babies with the genetic mutation — an early diagnosis is the key to changing the future of our disease.
As states start identifying these young patients, ALD Connect sees the importance of helping these families.
ALD Connect is raising money for a new program called The NBS SCOUT Initiative: Supportive Community Outreach & Understanding Together. It’s goal is to help newly identified ALD families to get questions answered and find support as they start their ALD journey.
Our goal is to raise $25,000 to initiate this program and help better serve the ALD community.
Please consider making a donation, sharing this, spreading the word and joining our team.
Thank you Team Jack!!
I've taken on the challenge to raise much needed funds for my favorite charity to fulfill their Possible Dream. With your support, together we can reach my team's goal and help a lot of kids who need our support.
Your gift will make a positive difference in the lives of children and families!
P.S. Please consider joining our team, too, and help us power up our fundraising efforts.
Festival of Children Foundation is the fiscal sponsor of this event.
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