Welcome to My Personal Page
Dear Friends & Family,
We need your help!
We’ve taken on the challenge to raise much needed funds for PVNH research to fulfill their Possible Dream. What is PVNH you may ask? PVNH stands for periventricular nodular heterotopia, it is a rare disorder in which the neurons in the brain do not migrate from where they’re formed and instead stay put near the ventricles of the brain. So what does this mean? The answer is unfortunately we do not know, it effects everyone differently, some people show virtually no symptoms others suffer from severe seizures, and array of other health problems. There is no treatment for this disease and relatively little is known about it. As you may have guessed by now, our Jeremy has been diagnosed with this rare disorder, he has yet to show symptoms but we do not know what the future holds which is why this community needs your support! With your support, together we can reach my team's goal and help a lot of kids who need our support.
Your gift will make a positive difference in the lives of children and families!
P.S. Please consider joining our team, too, and help us power up our fundraising efforts.
Festival of Children Foundation is the fiscal sponsor of this event.