The RARE Carousel of Possible Dreams

Dup15q Alliance

February 28th is the designated “Rare Disease Awareness Day” across the world. This year, 32 non-profit organizations--including the Dup15q Alliance--have partnered with the Global Genes and the Festival of Children Foundation to participate in the Carousel of Possible Dreams. The Dup15q Alliance’s “POSSIBLE DREAM” is to put monies in Tyler’s Travel and Clinic Support Fund Fund and help families in need get to a Dup15q clinic. We want to raise $15k in 15 days and need your help!

Will you Believe in our Dream?

Tyler's Travel and Clinic Support Fund were created in honor and in memory of Tyler Kobuszewski, a sweet and loving child with Dup15q Syndrome who passed away in 2014 at the age of 13. This fund is designed not only to support Dup15q Alliance clinics, but also to help families who have a need for their child seen at a Dup15q clinic, but do not have the financial means to do so. With a special attention placed on those struggling with hard-to-control seizures or other major medical issues, the goal is to help these families get to a Dup15q clinic. Though many families are treated by physicians in/around their communities, it is difficult to find doctors who fully understand the complexities of Dup15q Syndrome. That is why the clinics are so important to our families. Funds are limited, but the hope is to help as many families in need as possible.

Your donation will provide

 Travel Support

Financially Support families in need to visit a Dup15q Clinic

Clinic Support 

Fund current and future Dup15q clinics 

 

We are asking a few of our key partners to rally their friends, family, and networks to help our team raise critical resources for this important cause. With your support, our team can do it! Every gift counts. Thank you!

Would you like to join our team?

Thanks again.

Dup15q Alliance - Believe Committee

Festival of Children Foundation is the fiscal sponsor of this event.

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