The RARE Carousel of Possible Dreams

 Thank you for helping KIF1A families realize our dream!

Together, we have raised over $30,000 to accelerate KIF1A research. Thank you video from our KIF1A Kids: is a parent-led foundation dedicated to finding a cure for KIF1A-Related Disorder, a rare, neurodegenerative genetic disease. Approximately 100 people in the world are currently known to have the disorder, which causes complex medical conditions that rob children of their full ability to talk, walk and see. Waiting is not an option for KIF1A kids; we need treatment today. powers vital medical research to discover treatment. Every day we are closer to understanding KIF1A and how brain function is disrupted by mutations in the gene. We have an urgent need to support ongoing research leading to the discovery of medicine or therapy. Our fundraising goal of $25,000+ will be applied to medical research currently underway at Chung Laboratory at Columbia University Medical Center in New York. With your help we will get one step closer to discovering a cure for every KIF1A kid. 

Want to help realize our dream? Here's how:


Click the Donate Now button to make a general contribution to or donate to a team member's campaign. Search for team members by name here:

Join the Team

Want to become a fundraiser? Click the Join Team button to create your own online fundraiser for!

As a team participant/member, you'll set your own fundraising goal, create a personal page and invite friends and family to donate to your fundraising campaign. aims to recruit at least 50 fundraisers who pledge to raise $500 each to help us reach our goal of $25,000! (Don't worry if you don't reach your goal! Want to aim higher? GO FOR IT!)

Raise Awareness

Whether you support as an individual donor or join the fundraising team, you can give a boost by sharing our page with your social networks. 

Together, we will create a brighter future for KIF1A kids! 

Questions? Contact Kathryn Atchley at or learn more about our organization at Festival of Children Foundation is the fiscal sponsor of this event.

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