KIF1A.org is a parent-led foundation dedicated to finding a cure for KIF1A-Related Disorder, a rare, neurodegenerative genetic disease. Approximately 100 people in the world are currently known to have the disorder, which causes complex medical conditions that rob children of their full ability to talk, walk and see. Waiting is not an option for KIF1A kids; we need treatment today.
KIF1A.org powers vital medical research to discover treatment. Every day we are closer to understanding KIF1A and how brain function is disrupted by mutations in the gene. We have an urgent need to support ongoing research leading to the discovery of medicine or therapy. Our fundraising goal of $25,000+ will be applied to medical research currently underway at Chung Laboratory at Columbia University Medical Center in New York. With your help we will get one step closer to discovering a cure for every KIF1A kid.
Want to help KIF1A.org realize our dream? Here's how:
Click the Donate Now button to make a general contribution to KIF1A.org or donate to a KIF1A.org team member's campaign. Search for team members by name here: https://goo.gl/NuVXtH
Join the Team
Want to become a KIF1A.org fundraiser? Click the Join Team button to create your own online fundraiser for KIF1A.org!
As a team participant/member, you'll set your own fundraising goal, create a personal page and invite friends and family to donate to your KIF1A.org fundraising campaign. KIF1A.org aims to recruit at least 50 fundraisers who pledge to raise $500 each to help us reach our goal of $25,000! (Don't worry if you don't reach your goal! Want to aim higher? GO FOR IT!)
Whether you support KIF1A.org as an individual donor or join the fundraising team, you can give KIF1A.org a boost by sharing our page with your social networks.
Together, we will create a brighter future for KIF1A kids!
Questions? Contact Kathryn Atchley at firstname.lastname@example.org or learn more about our organization at www.kif1a.org. Festival of Children Foundation is the fiscal sponsor of this event.